8/29/09

A little 3-day help?

My husband's darling cousin (so my cousin-in-law!) is walking the Seattle Breast Cancer 3-day in September....with our Aunt Joann.

They are two wonderful people...one of the many reasons I was lucky to marry Bill (great family members)!

If you are, by chance, looking for a great cause...donate to Julie's walk! And let me know if you did so that I can thank you! And THANK YOU ALREADY to Aunt Barbara and Uncle Richard, and our darling friend Kathy Westerlund, who donated to Julie's walk after I posted the need on facebook.

8/28/09

A mini-retraction, followed by a mini-update

I always do this - blurt things out and THEN refine them in my mind, and hopefully, in the way I live. I should get over regretting the original blurt...especially on here. As this blog is so useful for cheap therapy, I'm bound to blurt, think, and refine.

And so the refinishing: I do still hate "cancer-free!"...but more when non-cancer people say it. If a person is a Survivor, she or he can still say whatever she or he wants. I may even be impressed that the Survivor can say "cancer-free!" (with the exclamation point). There is something awesome about putting aside all of the possibilities and going for pure hope.

Also in my mini-retraction, I should also write here that I DO like to get a rise out of myself and out of people, so I like to put the most miserable moments on the blog. One should never think that I am mostly in those miserable moments, though...not Pam Lucken! I like to visit them, touch them, make them hurt, and then go do something mindlessly fun and amusing like play Farmville for hours. So the amount of time I spend ruminating is less than one would think if they read my blog and didn't see the other (useless and amusing) ways I spend my time.

HOWEVER...I must still be sad and upset because daily I am looking for things to get rid of (donate, throw out, or just not buy). In addition, I CANNOT BRING MYSELF TO PLAN NEW GARDENS. That is shocking. It's a good thing I started 2 big new gardens this year already, and expanded one in a dramatic manner, and added significantly to three others. I can take a grief-inspired break and still have accomplished a lot in 2009, at least in the garden (though I do understand it matters to the world about as much as my playing around on Farmville...but this suburban housewife likes to feel like she has at least learned or transformed something in this year, aside from raising 3 children incrementally more).

Anyway, after a few weeks of craziness, it seems the Lucken family is hunkering down for some family time a bit. We had my Dad's crazed and fast demise, the funeral, the death of a kitty, the 3-day, then some cottage/extended family time, then a visit to my sister's in Evanston...and here tonight we are all back in the same room again. Dad and his Cub on the couch watching the Tigers, the girls lying around taking turns talking to themselves (usually Emma) and playing Webkinz (mostly Katie), and Mom walking on the treadmill and playing around on the computer. It's really nice to just be together and be relaxing for once. (And fitting in all the screen time we should have in one week in one evening!)

8/24/09

Gripe of the Day: "CANCER FREE!!!"

Here is my gripe of the day: I hate when people say "She is cancer-free!" (I've been surfing the 3-day pages too much.)

Let me start out with saying that yes, I was lucky to find my breast cancer early. My oncologist (and my husband) truly believe that I have been "cured." Furthermore, I AM proud to be a breast cancer survivor. However, I want to cringe whenever anyone says "she's cancer-free!" I don't believe in that statement AT ALL...not for me, and not for anyone else for that matter.

NO, I don't think I am having a recurrence of my breast cancer. I'm not experiencing any crazy symptoms. BUT, I will probably never feel "cancer-free" ever again - not after having given away my body parts, having watched the image of my youth shatter in front of my face, and most especially, having watched cancer take two of my loved ones from me this month. Cancer will always be a part of my life - every time I try to fill two cat bowls instead of one, and every time I think to forward an email to my family and realize there is no one at jcarroll@detroitchamber.com.

I am most in awe (and not in a good way) of people who can feel "cancer-free" after having had cancer in the first place. Here we all were, living our good little lives, and cancer came around anyway. So now, knowing that cancer can come and steal a little part of your world when you are doing everything "right", how can you go back to ever feeling "cancer-free!", especially after your bubble has been burst the first time? Didn't you learn anything the first time around? We aren't immune!

Well, my bubble has been popped for me. The preliminary pop occurred all throughout 2008...when I realized what I would have to give up, and then when I realized that I was going to have to live my life despite the idea that stupid cancer could pop back up, somewhere else, someday... and being a BRCA mutant, I feel even more at risk. This year really finished off the idea of bubbles for me entirely as I watched the life being sucked out of my loved ones.

So what do I think people should say? (Because if you haven't figured this out yet, I am totally opposed to the term "She's cancer-free!") I think I have settled upon the term Survivor. And yes, I hated that term, too, because I thought, "How do you ever really survive cancer? Doesn't it come back for you someday?"

Well, THIS is how you SURVIVE cancer. You wake up, and you decide to live your life, despite the diagnosis. And then, you wake up, and you decide to find something good in your day, despite the pain of cancer treatment, despite the nausea, despite the fear in front of you. And then, you decide to do whatever you can to help other people SURVIVE cancer...you try to show them It isn't that bad. You can still be happy, and crazy, and life a full life, even if you are bald, even if you have only one fake boob for awhile, even if cancer is threatening and taking other people in your family from you. And you take your steps against the disease - you ask people to help you raise money, and to help you make a scene of pink for 3 days in the summer, because even though you know that YOU can survive cancer, you also know that there is a scared woman (and her family) out there somewhere who needs that money, and who needs that sea of pink. All of those things make you qualified to say you are a Survivor.

I take being a Survivor seriously...not because I have survived into being "cancer free!", but because I have survived looking at my mortality and not going crazy. I have faced cancer, realized what it cost me, what it may do to me in the future, and what it most certainly has done to my loved ones, and I am sure that I will still live to be a (basically) happy, vibrant woman.

But don't ever put an exclamation point (or several, like it's a party), after the words "cancer-free". And don't expect me to do that, either. And I will tell you why, another day...when I feel like telling you what it looks like to see your darling cat's tumors grow and bleed all over your bed and make her cough and stop purring. And you can hope that I won't tell you what it was like to hold my Dad's hand for his last 10 hours of life, until it was cold and he took his last breath.

After that, you'd never be cancer-free!!!!! either.

8/21/09

Why does she write so much about the 3-day?

Let me just start by saying that I do not think about the Breast Cancer 3-day all the time. I actually think about it only just a little (despite all of my facebook status updates and my blog postings which seem to point otherwise)...my thoughts wander much more often to all of the sad things in my life these days. However, I do feel like I have a very serious responsibility to share my 3-day experience with all of my many wonderful donors, previous donors, and friends-who-might-someday-walk-with-me-and-share-this-wonderful-experience-or-at-least-donate-next-year. And thus, the updates everywhere.

So let's continue with all of these 3-day musings (which are more fun to think about than other things, very honestly)...I'll do it in Q and A format. I'll be asking the Q's and answering the A's.

Q1; What is your favorite thing about the 3-day?
A: This year, last year, or the year before?
Q1, continued: All of them.
A, continued: Well, the first year, I was very inspired by all of the kindness I saw. It seemed so wonderful that all of these people were taking such big steps to do things for other people - and not only the walkers and the crew, but the other volunteers who just show up, and even the people at the cheering stations!
I also can't stress enough how great it is to take 3 days out of your regular life...and when my children were a little younger, that was a huge benefit for me! I wouldn't have taken 3 days out for anything else.

Last year, I was inspired by my friends. I was thankful for those who walked with me...they gave me strength to do the whole thing bald, with one breast, and just after chemo. They gave me the strength to train when I felt like total yuck. Spending 3 days with people who would laugh with bald me and dance with bald me was really special. I also made some new 3-day friends...and that was great too.

This year...it's hard to say what was the best. All of it was wonderful, because I'm used to the event, and because I'm not bald! Yes, it was harder for many people physically, but for me, this year was easier. I wasn't bald, and I had just gone through such a horrific time in my life...and the 3-day was a great escape. Of course, then I had to face everything again once I got back from the 3-day...and that is not fun.

But one thing that crosses over all 3 days is this...I just really love walking!

Q and A continued tomorrow. Tylenol pm and melatonin starting to work!

8/18/09

Why you should seriously consider walking the 3-day, by Pam Carroll Lucken

Doesn't that sound like a paper I might have written as a 7th grader or so?

Anyway, HERE is why you should seriously consider walking the 3-day:
  1. It totally helps you forget that you are supposed to be miserable. If a woman can walk and have fun, just days after burying her Dad and saying goodbye to her darling cat of 13.5 years, you know it is a good time.
  2. When the misery begins to set in (after sisters are gone, and all the work of dealing with the giant holes in your life starts), you can still have great pictures to look at...and wonderful emails from your NNN teammates...and memories.
  3. My beyond-wonderful friend-from-high-school-and-roommate-after-college-turned-NNN teammate of 2 years STILL thinks it was a great time, despite needing to be hospitalized following the horrific heat.
  4. It turns strangers into friends, acquaintances into great friends, and friends into family.
  5. You will never regret taking big steps to do something wonderful for other people...and to do that with 1800 other walkers and tons of other crew members and volunteers is something really powerful.
  6. You can become a part of a very wonderful legacy!!! To date, Team NNN (Nancy's Naughty Nockers which is No More Naughty Nockers this year...Team NNN for short) has raised over $200,00 for breast cancer research and support. That is huge!
Of course, if you donate to my walk, I will do my best to give you a feel for the event as well...and I will be eternally grateful.

I am extremely proud to say that with the help of my family and friends, Bill and I have raised a total of $18,000 for the 3-day in the 3 years that I have been walking it! And I will never NOT walk the 3-day...not until there is a cure. I am signed up for 2010, and I would sign up for 2020 if I had a chance. I have children and other beloved family members and friends to protect from this stupid BRCA genetic defect.

Plus, I just really love walking.

3-day picture

Here's a picture of us at the 3-day!

8/17/09

I will write about the 3-day, but here is what I'm doing today...

I'm going to play around with some of the blogger features and hopefully put up a slideshow in a few days to show the glories of our very hot and yet very fun 3-day adventure this year. I'll write about it soon, too.

When I was uploading the pics from the event from our camera, I came across pics of my Dad (taken a couple of days before he died, at my niece Natalie's birthday party). This has caused a few tears to erupt, and also has led to me signing up for my next event to try to make a difference in the world of cancer...the Pancreatic Cancer Action Network's PurpleStride Detroit event.

Please consider joining me on that day, either on our team or on another team. If you can't join me, then please donate! Pancreatic Cancer is a horrific disease, and researchers could use our support.